CPWG Library
The CPWG library contains several books on Parkinson's that are helpful both to People With Parkinson's and care partners. The books are available for checkout at our monthly meetings; just sign your name, phone number and the date checked out on the card inside the front cover of the book and place the card in the box next to the books. Books can be returned at a future CPWG meeting.
While there is no time limit on how long books can be signed out, we ask that books not be kept for a prolonged period of time as other members may be looking for that book to borrow.
Suggestions for new books are welcome, and can be given to the Librarian at the monthly meetings or Emailed to the librarian@cpwg.org
Book lists as of November 2009 (PDF format):
Member Liaison
Our member liaison person spreads a little "sunshine" or cheer" to those members who are sick, having a birth, or have had a death in the family. Custom designed greeting cards can be mailed to those people needing a little cheering up.Click ---> cards to see example cards.
Contact judy.iovanna@cpwg.org for more information.
Parkinson's Dance Program
The Neighborhood Music School offers a Dancing with Parkinsin's program specifically tailord to People With Parkinson's.
Click on Music School and view the Special Programs topic under the Programs menu for more information.
Websites
There are many fine websites open to anyone interested in PD and related diseases. Rather than try to list all of the good ones, the following subset will cover most of your questions. Also, they frequently refer to other sites for additional information.PDtrials
PDtrials is a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research. This campaign features the website PDtrials.org, which is dedicated to providing easy to understand, up–to–date, centralized information on Parkinson’s disease clinical trials that are looking for participants.For further information, click on Research above.
http://www.PDtrials.orgYoung Parkinson's
a site for those who are younger than the usual 50 and above when diagnosed. Of course, you may access this site if you are any age.http://www.youngparkinsons.org/pages/index/siteindex.htm
National Parkinson's Foundation
The Mission of the National Parkinson Foundation (NPF) is:- To find the cause of and the cure for Parkinson disease through research.
- To improve the quality of life for persons with Parkinson and their caregivers.
- To educate persons with Parkinson, their caregivers, healthcare professionals, and the general public about Parkinson disease and its treatment.
http://www.parkinson.org/NETCOMMUNITY/
Michael J. Fox Foundation
The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.PAN
The Parkinson's Action Network (PAN) is the unified voice of the Parkinson’s disease community—advocating for more than one million Americans and their families.Today PAN serves as the voice of Parkinson’s on numerous public policy issues affecting the Parkinson’s community. In addition to continuing our work on NIH funding and research, the Parkinson’s community is now a powerful voice on many crucial issues including Parkinson’s-specific programs at the Departments of Defense and Veteran’s Affairs, FDA drug approval issues, HHS programs (Medicare and Social Security), and our continuing struggle to achieve research freedom for stem cell research.
We at PAN have established a strong national grassroots advocacy program, which drives our success on PD-related issues. PAN continues to be the leading voice for patient advocacy in Washington, D.C., working to bring much-needed awareness to the public and lawmakers about the affects of Parkinson’s disease. We hope that with greater understanding, we will make great strides in finding better treatments and a cure for Parkinson’s disease.
American Parkinson's Disease Association - Connecticut Chapter
The Connecticut Chapter of the APDA is a grass roots organization which provides:- Assistance with outreach, awareness and educational programs
- Organization of fund-raisers, like annual Walk-a-thons, which support services in the state and research across the country
- Acceptance of donations from individuals and groups made in memory or honor of Parkinson’s patients
- Coordination of volunteer efforts within the Parkinson community
- The Chapter is affiliated with the Information and Referral Center located at the Hospital of
Saint Raphael in New Haven, CT. The Center offers a variety of programs and services to help you and your loved ones affected by Parkinson's live life to its fullest potential. The Center's free services include:
- A telephone help line (203-789-3936 and toll-free 1-877-282-7328) for information and assistance
- Referrals to important community resources
- Counseling and advocacy
- Newsletters, handbooks, and other materials
- Educational lectures and community programs
- A library of books, videos, and audio tapes
Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy. We are working for the nearly one million people in the US living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services.Additional Websites
http://www.needymeds.org/ offers free / discounted meds.
http://www.pharmacychecker.com/ drug shopping information site.
http://www.drugs.com/drug_interactions.html/ drug interaction checking site.